In 2014, the COPD Foundation teamed up with
Sunovion Pharmaceuticals and Caring.com to
launch COPD Together, a special program
designed to provide information and support to
COPD caregivers. This autumn, COPD Together
will release a series of webisodes (online
episodes) to capture the rewards and challenges
that patients and their caregivers experience.
The webisode series entitled REEL COPD ,
will take a personal look into the touching and
oftentimes complex relationships between
friends and family. The stories shared will be
both educational and inspirational.
In the early days of the Information Line, when
call volume was low, it was Mary Ellen who
kept everyone focused and energized and soon
became the heart of the group. Her mantra
we can do more was a huge factor in the
growth and influence of the Information Line.
Her gentle, positive, and comforting way often
resulted in callers asking to speak with only her.
She loved to keep track of everyones birthday,
celebrate milestones in their lives and provide
comfort during hard times. In spite of physical
challenges, Mary Ellen left every caller with the
knowledge that she truly cared.
with COPD and
no longer able to
pursue his work as
an engraver, Chip
turned his talents
to web design.
Chip became a cofounder
at a time when chatrooms and listserves were still
in their infancy, Chip designed and managed the
COPD International website and listserve. This
allowed patients across the country to communicate
with other patients in sharing their stories, concerns
and updates in treatment advances. For many newly
diagnosed patients, Chips work provided eagerly
sought information and outreach and helped improve
countless lives. Additionally, his work with Breathe
New Hampshire continues to bring COPD awareness
to the citizens of the state he so loved.
So it was with great excitement that on July 6,
2015, the COPD Foundation announced that the
FDA had approved a new clinical biomarker,
plasma fibrinogen, for use in clinical trials of
patients with COPD.
November is around the corner, and you
know what that means! Time to tell the
world about chronic obstructive pulmonary
disease for COPD Awareness Month! Our theme
for the month is Me and COPD so join us by
participating in fun, easy activities that will
allow us to make some noise and successfully
garner public attention for a disease that affects
30 million Americans. Speak up this November.
While Medicare has saved a great deal of
money under competitive bidding, there have
been problems and unforeseen consequences
as a result. Many liquid oxygen users have
experienced difficulties due to competitive
bidding. Liquid oxygen is often a preferred
mode of supplemental oxygen in that it is
easily transported. Usually liquid oxygen
must be delivered weekly resulting in making
it more expensive for oxygen companies to
provide versus compressed oxygen which can
be delivered less frequently. Because many
oxygen providers feel they cant profit from the
reimbursement they are given, they have been
systematically attempting to remove liquid
oxygen from the market.